Tuesday, October 28, 2014

Gooooo Team

Infants are tough. Yup I said it, cause it's true. Twin infants are times 4 tough. And twin infants, one with a heart defect, are fun and tough-er-est.

It's not the logistical, no-sleep tough that gets to you though. It's months in the NICU, infant heart surgery, a whole team of medical professionals that many times I can't keep straight that becomes the toughest. I don't want it any other way, I don't wish for "different" kids. I just wish for more time as a family, more time with the twins and more time to do our own thing.

Let's back up, mmkay? At 12 weeks preggo (and rarely keeping food down), we were told Twin B had increased thickening of the neck. It was right on the border of being a concern so we decided to run a chromosomal test. Everything came back a-ok. So I ate more cheerios and ginger ale.

Week 20, the day after Christmas, we were going to find out if these crazies were boys, girls or monsters. I was going with monsters. That conversation was side-stepped as they noticed Twin B's heart was on the other side and turned around. Yup definitely monsters.

Less than a week later we were working with Boston Children's Heart Center and discovered that Twin B had more than a silly placed heart. To put it simply, all the pieces of his heart were there but the piping was a little off meaning un-oxygenated blood would be delivered to his body when he was born. It was "fixable."

Writing it makes the process sound simple and clear cut. It was not. There were no guarantees and we knew months out that our norm was not everyone's norm.

So reached out to some of our closest friends and family. From medical professional friends to those who spent time at Children's Hospital to those who just "got it." This is our core team, the people we work with that can't prescribe a single piece of medicine to the boys, but provide our little family with something much more important.

And that is how we keep moving forward.

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